Small victory last night...no fever! That doesn't mean anything in prediction for tonight, tomorrow night, or next year, but I DON'T CARE. Last night I didn't have a fever, so I am celebrating. HOORAY!
I guess a good night's rest means busy day to follow. I get blood drawn every morning, anytime from 2:30 am to 5:00 am, so when my doctor rounds the floor in the morning, the results are back from the lab for his review. Mine showed low hemoglobin, so I was ordered to have a transfusion of 2 units of red blood cells today. Once my new stem cells start their cell factory, these transfusions will become a memory, but again, this is a journey, and a slow one at that.
I was able to make someone else's day today, though, and that was worth getting a good night's sleep for. Dee, my new friend who makes sure my room is germ-free, came to visit me and told me some pretty awesome news. She was recognized through email and also given a gift card for the compliments I paid her when talking to the staff here at Karmanos. Dee was happy, so that made me even happier! We celebrated with a fresh caramel drizzle Keurig coffee this morning and a high five. She's the best. It is truly people like her that make this "not so fun" stay very welcoming and comforting. ALL of the staff, nurses...everyone have been more than gracious and caring since the first day I moved in.
More good news! My new friend Jon got his bone marrow transplant this morning. He is a few rooms down from me and I have talked to his wife in the hall a few times. I am excited for him and it makes me really think about all of the people on this floor, all fighting for the same thing as I am; a cure. They are all brave and strong. I admire them, some doing better than others, but all fighting and that's what counts here.
Speaking of people that fight, Nikki, a girl I met years ago when she was getting her own bone marrow transplant, was on my floor today. She comes here periodically for pheresis and is still fighting the good fight with long term challenges post transplant. I was able to go and visit with her and even got the chance to meet more of the Karmanos staff I hadn't met yet.
A lot of great things happened today, now that I think of it. More fan mail came! Teresa and Emily both sent me cards to add to my growing collection on my wall. I love it because all of the cards hang on the wall facing my bed and I am reminded of how many people are cheering me on. I lean on that support more than anyone knows. I also set a new personal best for number of laps completed around the unit today, 48 laps! 16 laps equals a mile, so that means 3 miles logged for this girl! 5+ days post transplant and I am pretty proud of myself, as I remain focused on my goals and determined to never give up or make excuses for myself because of how I feel. Trust me, easier said than done.
Although my son didn't make it up since he just got up to date vaccines today, so it was suggested he wait a day to visit, it helped to see a lot of my friends as my heart felt sad since it's been days since the last time I saw J. I had visitors throughout the morning and day, including Alice and Tim Doppel, who I consider an extension of family to me. They are truly a gift from God. I've known them since I became a registered parishioner of St. Blase Catholic Church. If I could pick one couple that are an example of God's love, it would be them; hands down.
The night was complete with Girls' Night In with Emma, Heather, and Sarah. They came to my room with dinner, movies, stories and laughs. Congratulations girls, I went all day without bad stomach pains, until you ladies showed up. That's ok; the stomach pain is from laughing so hard. I love you guys and you rock my world.
Day +5 people...one day at a time.